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Cure for Chronic Lymphocytic Leukemia is dedicated to finding a cure for CLL.
We are involved in fund-raising so that will happen!
We are also involved in advocacy. We must ensure the decision-makers at the state and federal level know us as
CLL patients, and are aware of our need for increased funding leading to better treatments for CLL, resulting in a cure.
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Contact:
Scott Slotterbeck, Interim Director
PO Box 276654
Sacramento, CA 95827
or call him at:
(916) 361-1921
(916) 395-4009
Or e-mail him directly at:
Scott Slottterbeck
CLL cells (blue stain)
Scott Slotterbeck is the current Director of Cure for CLL. In addition to running the Yahoo group CLLResearch
e-mail list, Scott likes to hike, bike, and camp. He also rescues stray animals.
Growing Cure for CLL:
Any organization is only as good as the people who choose to join it. Cure for CLL will be no different.
No one person can devote the time, energy and money to make Cure for CLL a success. But a group of committed individuals
can.
I've set up the organization, gotten the IRS charitable designation, registered Cure for CLL under California state law,
and put up this website (as barebones as it is...).
Our IRS number is 02-0706951
The mission of this group is to raise money to fund worthwhile research projects with the goal of curing CLL.
The bottom line is...
The more people we can get to make this dream a reality, the faster a cure will be found!
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Our Programs
In the future, Cure for CLL will offer a list of research projects funded.
Status Report:
Where we stand now-
- Cure for CLL has an initial donation by Scott Slotterbeck to get things started. We have our IRS 501(c)(3) designation.
We are registered in the State of California as a charitable organization.
- We have requested a pro bono design for a logo for our organization.
What we need to do-
- We need to grow our organization
- We need to identify worthy research projects for funding
- We need to establish fund-raising efforts
- We need to designate a day or week as "CLL Awarness Day or Week"
- We need to establish an organizational structureWe need to bring qualified persons on board who can help advise us on
how to distribute our funds
From Cure for CLL
Musings...
On Reading medical literature
On my e-mail list, I like to post medical articles, usually abstracts of papers published in medical journals.
There is a 'variability of readability' in those papers. Some papers are fairly easy for the layperson to understand.
Some are incredibly difficult to understand. The more difficult papers are generally so because they either address
unfamiliar concepts, or they pepper their paper with arcane terms that only someone in the field can fully understand them.
This, obviously, represents a problem for the lay reader. Although I have some educational background in the life
sciences (having a minor in biology and chemistry in college), many of the papers printed are difficult for me, too, to follow.
And yet, I can usually get something out of the article (after all, if I can't understand it at all, it doesn't get posted
to the list!). Some tips:
- Read and re-read. It may take a few passes to more fully understand the material presented. After all, an
abstract is an attempt to distill a full-length paper into a few paragraphs.
Note: No endorsement implied for any of these links.)
- Ask your healthcare provider. If there is a treatment that is mentioned in an abstract or medical article,
you may wish to print it out and take it to your next appointment. You may get answers to your questions from your doctor.
- Ask for feedback from other members on reputable on-line discussion groups. Of course, this option probably means
you'll have to double-check with your doctor or other knowledgeable source to make sure important information is correct.
Some lists, in particular the GrannyBarb list is frequented by medical and research persons who may choose to answer your
question.
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PO Box 276641
Sacramento, CA
Copyright 2004-2007, Cure for Chronic Lymphocytic Leukemia
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